Data Protection

The SDSR-EU manages patient data in accordance with the applicable data protection regulations, in particular the General Data Protection Regulation (GDPR) of 25 May 2018.

You have the right to information about the stored personal data concerning you. If you discover that wrong data is being processed for your person, you can request a correction or a specific supplement. You have the right to request the deletion of your data if there are specific reasons for deletion. This is particularly the case if they are no longer necessary for the purpose for which they were originally collected or processed. You have the right to restrict the processing of your data, which means that your data will not be deleted, but will be labeled in order to limit its further processing or use. Non have a right to data portability and a general right of objection.

Data Manager:

Dr. Cornelia Zeidler, OE6860, Department of Hematology, Hemostaseology, Oncology and Stem Cell Transplantation, Hannover Medical School, Carl-Neuberg-Straße 1, 30625 Hannover.

If you have questions or if you believe that the processing of your personal data is not lawful, you can contact the Data Protection Officer of the Hannover Medical School:

Data Protection Officer of the Hannover Medical School, OE 0007, Carl-Neuberg-Straße 1, 30625 Hannover.

You have the right to complain to the regulator if you believe that the processing of your personal data is unlawful. The address of the supervisory authority responsible for Hannover Medical School is:

The State Commissioner for Data Protection Lower Saxony, Prinzenstraße 5, 30159 Hannover Information Sheet – Version: January 2019 5/10

As part of the data processing, the medical information is encrypted (pseudonymised) before being entered into the database of the SDSR-EU. If required, re-identification of personal patient data can only be done by the coordinating database center. This may occur if you / your child is desired to decrypt, for example, to obtain a file inspection, or to forward specific information to you or another doctor or clinic. Information about which you can be identified can only be shared with anyone outside our SDSR-EU after your written consent.