Skip to main content

SDSR-EU

Shwachman Diamond Syndrome Registry Europe

Show Navigation
Hide Navigation
  • Home
    • About Us
    • Research laboratory
    • Genetic Testing
    • Team
    • COVID-19
    • Data Protection
  • SDS
  • Handbooks
  • Forms
    • Consents
    • Registration Forms
    • Yearly Follow-up
    • Special Events
    • Laboratory Diagnostics
  • Publications
    • Book contributions
    • Manuscripts
  • Links
  • Partner Countries
    • Armenia
    • Austria
    • Belgium
    • Croatia
    • Czech Republic
    • Denmark
    • Egypt
    • Finland
    • Germany
    • Greece
    • Ireland
    • Israel
    • Italy
    • Norway
    • Poland
    • Portugal
    • Romania
    • Russia
    • Slovakia
    • Spain
    • Sweden
    • Switzerland
    • The Netherlands
    • Turkey
    • UK
  • Contact us

Forms

Warning message

Style Settings CSS files have been rewritten successfully. Check Recent log messages for details.

Please find all registration, consent and lab forms below. You can access the pdf forms by clicking the corresponding text.

 

Consents

Consent forms for:

  • Consent form for adult patients or minor patients' parents (legal Guardian)
  • Consent form for minor patients
  • Consent form to participate in the biobank
  • Consent for molecular genetic analysis
  • AMENDMENT to the DECLARATION FORM

Registration Forms

  • Registration Form for Shwachman-Diamond Syndrome

 ...

Yearly Summary Report

  • Yearly Summary Report for Patients with Shwachman-Diamond Syndrome
  • Yearly Summary Report for Patients who underwent Stem Cell Transplantation

 ...

Special Events

  • Stem cell Transplantation reporting form
  • Pregnancy reporting form
  • Severe adverse event form
  • Leukemia reporting form
  • Death reporting form
  • ...

Laboratory Diagnostics

  • Request for G-CSF receptor mutation analysis
  • Request for gene mutation analysis
  • Accompanying form for biological material (required for sending of biobank samples)

 ...

  • English English
  • Deutsch Deutsch

Search form

Facebook

 
SDS Foundation

YouTube

Neutropenic diet
More videos on our channel

+49 511 557105

Hannover Medical School

Contact

  • Privacy policy
  • Copyright © SCNIR- Severe Chronic Neutropenia International Registry
Scroll to the top